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Life of a Professional Patient, Blog#7: Radiofrequency Ablation with RA?

Radiofrequency ablation has nothing to do with RA. Unless RA pain from the spine is real. Warning: This is one of those personal posts. It was an unusual week. Monday: We drove to Orlando for Roo’s...

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The Mouse in My Pocket: We Are Not All Alone

RA can be Isolating. Even with loved ones, we might feel lonely because they don’t know what we’re going through. Our friends can’t visualize the ice-pick that’s stabbing us or appreciate what it’s...

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Keeper or Loser: I’m Not Giving Up, But What Do You Think?

Warning: this is one of those rare personal posts specifically about my life, but I thought it was relevant to share. We have two endearing names for rheumatologists which I’ve coined over the years:...

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Rituxan Decision: Serving Humanity or Taking Care of the Patient (Me)

This is one of those rare posts about my personal medical journey, a Professional patient post. That’s kind of a warning in case I use the word “I” too many times to be polite. It’s crunch time. No one...

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The Confusion of a Smile

If you have RA, you’ll probably just nod your head as I share this private experience. If not, you may just scratch you head: huh? It’s all good, right? Well, mostly… I mean, a lot of living with RA is...

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Leaving It All on the Field: Not the Safest Choice But Maybe Best

Sightseeing, small steps, and sleep I’ve spent most of the last 3 weeks lying down with ice on my neck, or taking extra meds for the back spasms. The night before the FDA tofacitinib hearing, my back...

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Kim Kardashian, Magazines, & a Trendy Practice that Bugs Me

One perk of having a blog is that you have a place to blow off steam sometimes. Remember when I got robbed and the thieves found their bliss at Target, who tried to pin the bill on me? I always say RAW...

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Five Things I’ve Learned about Rheumatoid Arthritis in the Neck

I promised to write about what’s going on with my neck. It’s hard to sort out what would help others to know, so I made a list of five things I’ve learned. Sometimes, it’s about sharing our journey...

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2 steps forward, 1 step back is not a dance move – It’s just life

I’m happy to share NINE new onset stories with you! People write to me all the time about how helpful it is to find these when searching for a diagnosis or trying to understand a new diagnosis. They...

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If the Gloves Come Off, We Might See the Irony of Rheumatoid Disease

What if the gloves never come off and no one ever knows. Then you end up with a serious disease that everyone thinks is no big deal; it’s just arthritis. But who wants to take them off? I sure don’t....

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