Life of a Professional Patient, Blog#7: Radiofrequency Ablation with RA?
Radiofrequency ablation has nothing to do with RA. Unless RA pain from the spine is real. Warning: This is one of those personal posts. It was an unusual week. Monday: We drove to Orlando for Roo’s...
View ArticleThe Mouse in My Pocket: We Are Not All Alone
RA can be Isolating. Even with loved ones, we might feel lonely because they don’t know what we’re going through. Our friends can’t visualize the ice-pick that’s stabbing us or appreciate what it’s...
View ArticleKeeper or Loser: I’m Not Giving Up, But What Do You Think?
Warning: this is one of those rare personal posts specifically about my life, but I thought it was relevant to share. We have two endearing names for rheumatologists which I’ve coined over the years:...
View ArticleRituxan Decision: Serving Humanity or Taking Care of the Patient (Me)
This is one of those rare posts about my personal medical journey, a Professional patient post. That’s kind of a warning in case I use the word “I” too many times to be polite. It’s crunch time. No one...
View ArticleThe Confusion of a Smile
If you have RA, you’ll probably just nod your head as I share this private experience. If not, you may just scratch you head: huh? It’s all good, right? Well, mostly… I mean, a lot of living with RA is...
View ArticleLeaving It All on the Field: Not the Safest Choice But Maybe Best
Sightseeing, small steps, and sleep I’ve spent most of the last 3 weeks lying down with ice on my neck, or taking extra meds for the back spasms. The night before the FDA tofacitinib hearing, my back...
View ArticleKim Kardashian, Magazines, & a Trendy Practice that Bugs Me
One perk of having a blog is that you have a place to blow off steam sometimes. Remember when I got robbed and the thieves found their bliss at Target, who tried to pin the bill on me? I always say RAW...
View ArticleFive Things I’ve Learned about Rheumatoid Arthritis in the Neck
I promised to write about what’s going on with my neck. It’s hard to sort out what would help others to know, so I made a list of five things I’ve learned. Sometimes, it’s about sharing our journey...
View Article2 steps forward, 1 step back is not a dance move – It’s just life
I’m happy to share NINE new onset stories with you! People write to me all the time about how helpful it is to find these when searching for a diagnosis or trying to understand a new diagnosis. They...
View ArticleIf the Gloves Come Off, We Might See the Irony of Rheumatoid Disease
What if the gloves never come off and no one ever knows. Then you end up with a serious disease that everyone thinks is no big deal; it’s just arthritis. But who wants to take them off? I sure don’t....
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